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Latest / Health and life sciences

Rule changeHealthGovernmentGermanyConfirmed

Bundestag passes Germany’s Health Data Use Act to open health data for research

See how this story connects

Source: Bundesministerium für GesundheitAlso reported by Bundesministerium für Gesundheit (FAQ)

The Bundestag passed the Gesundheitsdatennutzungsgesetz (GDNG) on 14 December 2023; it took effect on 26 March 2024 after the Bundesrat’s second passage on 2 February 2024. The law creates a central data access and coordination body, lets the research data centre’s data be linked with cancer registries, and switches donation of electronic patient record data for research from opt-in to opt-out. Statutory health insurers may also use billing data to flag individual health risks in defined cases.

Why it matters

Researchers and companies building health AI in Germany got a legal route to pseudonymised insurance and patient record data from about 2024, with patients able to object.

When
14 Dec 2023
ID
WTA-N-2023-0152
Where
Germany
Who
Bundestag, Federal Ministry of Health (Germany)

Summary by wheresthe.ai, from Bundesministerium für Gesundheit and the reporting credited above. Checked against the source on 9 Oct 2026.

Read the original at Bundesministerium für Gesundheit

Source copy: download the page as saved on 18 Oct 2026 (PDF). Documents the source offers: document 1 (PDF), document 2 (PDF), document 3 (PDF). Also held by the Internet Archive.

Cite this story

WTA-N-2023-0152: “Bundestag passes Germany’s Health Data Use Act to open health data for research.” wheresthe.ai, 14 Dec 2023. https://wheresthe.ai/d/de-gdng-health-data-use-act-2023-12/ (source: Bundesministerium für Gesundheit).

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